Here I sit this evening, far from family and far from normal, reflecting on the quiet greatness of life. Candice and I are here in Cincinnati tonight, getting ready to start down the hopeful road of change for her. I admire her. She is strong in her demeanor and will. And yet, so precious with her little white ankle socks and her Kit-Kat chocolate eyes. Outside, the roar of semi-trucks fill the air as billions of snowflakes float gracefully, peacefully, and with ease down to the ground. But in here, Candice is laying against her pile of pillows and with her whisper of a voice, reading a Dora The Explorer book. See, to you and I and her mother, we want to “fix” Candice…make her better. We want to help her sound “normal”. But Candice knows no other for herself. She still smiles and loves and enjoys life the way she has always known it. She herself isn’t out trying to find ways to mask her deficiency. But as her father, I have been placed in charge of caring for her, providing for her, and even making those decisions that will cause her pain, but that in the long run, will be better for Candice.
Today, we met with the doctor that will be working on Candice’s throat in the operating room tomorrow. Candice basically has one vocal cord (you’re suppose to have two.) After much discussion this afternoon, it was brought to my attention that Candice’s very first surgery (the one the other two girls had as well) may be partially to blame for some of Candice’s paralysis of the left cord. Something that potentially saved her life, also took something from her…
In my life, I never know how God is going to reveal Himself. As hard-headed as I am, God finds unique ways to get my attention; to remind me of His “godness.” This afternoon, I was sitting in this large green chair with Candice on my lap. They had me hold her as the doctor stuck a camera up her nose and down her throat so that he could see what all was going on. He said that he is going to do the same thing tomorrow while she is asleep, but he did it today, while she was asleep because he needed to watch everything work while she was talking. From where I was sitting,…I got to watch the screen and see God’s handiwork that is my daughter. I watched the throat open and close. I watched the back of her tongue work to make sounds. And a little later, the doctor walked me through most of the video that was taken.
Tomorrow’s surgery will be much more invasive. The doctor will be looking much further down her throat to assess scar tissue, vocal cord paralysis, and get a look at past surgeries. Based on what he sees, he will be injecting her with one of two different synthetic solutions. Everything he does can be reversed if there is an issue or bad reaction. He is a cautious doctor, despite being a specialist who injects others with man-made tissue-like substances. And for prolonged success, this doesn’t sound like the last trip to the Children’s Hospital in Cincinnati, OH.
With Liz not being here, this is all obviously difficult on her. In fact, due to her pain that is basically endless right now, Liz could potentially be headed for another surgery before the end of the month; prior to our insurance running out. Liz, along with her mother and others, are home caring for the other four kids.
Inside my feeble little mind, when I begin to take on my life, I freak and begin to live scared. Its as if I try and turn myself into Atlas and carry the weight of the world on my shoulders. How can I help to fix Liz? What does Logan need to continue to grow and become who God wants him to be? What needs to be done to better Candice? How severe is the damage to Hudson’s brain? How can I be a better father to Samantha and Madison? Where am I going to find my next career opportunity? But I have to realize that my job is not to be the lighthouse for my family in this storm. No, my role is to make sure the light stays lit; to keep God at the forefront of all stress, fear, and unknown. If I cave, give in, or give up, why would I expect any different from anyone in my family? My question is no longer “If” or “When” God is going change some of the situations in my life, but rather, “God, can I please be here when you do?”
The snow has begun to fall again outside. The fog is settling over the barren trees and the muddy waters of the Ohio River. Candice is enjoying her pizza and Sprite (its her week and its what she wanted). My heart is racing as tomorrow can’t get her fast enough. Tomorrow, I will be pacing the halls once again; just in a different hospital this time.
For those that have asked me how they should pray or told me that you are praying, here’s my list:
1.) Prayer for Liz as she continues to battle the pain of her leg.
2.) Prayer for Candice, that she will get through tomorrow better than medically expected.
3.) Prayer for the doctors and nurses that will be with Candice during the procedure.
4.) Prayer for Logan. I miss him and apparently, according to Liz, he misses me.
5.) Prayer for Hudson, Madison, and Samantha as everything is not normal right now. Prayer for less stress.
6.) Prayer for the weather here. Its already a little crazy and they are expecting more than 5 inches of snow. Lots of wrecks on the news today.
7.) And lastly, (I always seem to tear up when I humble myself enough to ask for prayer over me)…I need some peace and rest. I think that if I shut-up for just a few minutes, when I sit down to ponder all that is swirling around inside my head and heart, I feel a bit broken. I am always fighting the battle of breaking down and telling everyone I am fine. Yes, there is a middle ground, but that peak is so small and so hard to stand on. Thank God, I don’t have to travel alone.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26)
Big Poppa, Donny
Mommy of Multiples, Liz
Logan Chase
Hudson Pierce
Madison Paige
Candice Bailey
Samantha Lacy



